My Story

Mike

A New Beginning

No matter what, we always have the power to choose hope over despair, engagement over apathy, kindness over indifference, enthusiasm over lethargy, love over hate. This is our true freedom. Whatever life may throw at us, we have the freedom and ability to choose our attitude. And I believe it is in those moments of choice that we manifest our destiny.
Cory Booker

15 September 2024

At the moment I have several threads of thoughts knotted in my awareness, and in the interest of coherent communication, I’ll work to untie the threads one by one and follow each to share with you what’s happening in my life and, hopefully, to connect with what’s happening in yours. First, as many of you have expressed interest in my health situation, I’ll share what I know. I reported in July that a PET scan had detected that my unanticipated and undesired companion is back. It isn’t hanging out in so many places as before, but the crud was definitely detectable. As I understand it, my body had adapted to the hormone-suppressing medication I was taking, so it started creating testosterone more actively, which apparently put the crud in a party mood. So now I’m on a stronger medication, which explains the more frequent hot flashes and higher levels of fatigue. But aside from that, I’m feeling fine. I’ll have another scan in November to assess the effectiveness of the new treatment. I hope it’s working…I kinda like being around and being able to do things.

I’ll admit that I’ve been lazy and unmotivated for the past few months about many aspects of life. I could say that I’ve been busy, but I really haven’t been THAT busy. I call it lethargy. At some point I went into what I feel is semi-consciousness. I haven’t been moved to post here, and I’m not sure why. I haven’t even responded to some of the kind e-mail messages that some people have sent in response to my last post. If you are one of them, please forgive me. I had quit my daily meditations, I had not done the Lovingkindness Meditation, Iʻve done very little in the way of exercise and have given up on my bodyʻs redistribution of fat globules (not pretty at all). Iʻve spent too much time watching YouTube videos and playing solitaire. And because Iʻve felt no symptoms of the cancer itself, but only the side effects of the treatment, Iʻve gotten sloppy and lazy in being aware of the condition and of working proactively to address and manage it. I suspect that some of you may be familiar with this kind of situation, and that’s a statement of solidarity, not judgment. For those of you who were brought up Roman Catholic…mea culpa, me culpa, mea maxima culpa. So how do I get off my gluteus that has been growing ever more maximus?

I titled this “A New Beginning” because Iʻm starting to move again, aided by two blessed stimuli. For one thing, I’m now back in our home in Hawaiʻi, and the beauty and energy of this island just does something to me. As I turn out of our condoʻs parking area on a clear morning, the vision of Mauna Kea straight ahead makes me smile. After the hot, dry landscapes of California, the nightly rains and lush, verdant jungle that surrounds us reminds me of what Hildegard of Bingen named viriditas, the vibrant, alive, pulsating greenness of life. It also reconnects me with the Green Man, a pivotal character in my doctoral thesis twenty years ago. Heʻs a wild, nurturing, deeply masculine presence in nature, and I love tapping into his energy.

The second experience that has moved my heart to move my life again was a journey that I took a few short weeks ago to Finland and Sweden. In Finland, I visited with my brothers and sisters (and their spouses) from a family that I had lived with for only a short time 57 years ago, when I was a 17-year-old exchange student. That visit enriched my life in ways I can’t describe. After spending two weeks with these wonderful, loving people, I traveled to the outskirts of a tiny Swedish village a couple hours south of the Arctic Circle to attend the wedding of Karen Karlsson and her AWESOME new husband Nils. Karin and I had adopted each other when I walked the Camino de Santiago in 2013…she calls me her Camino Dad, and I HAD to be at the wedding. My journey was magical, and the love that I felt with all these glorious beings ignited my heart in ways that I had forgotten. Kiitos, perheeni! Och tack från mitt hjärta, Karin och Nils! These are more than friends. They really are my family. (In fact, I’m a member of FIVE loving families…maybe I’ll do a post on that sometime. And how amazing is that?) So my Finnish family is in the picture above, and my Swedish family is pictured to the right or below, depending on how you’re viewing this. Aren’t they all beautiful?

So what does this new beginning look like. Well, I’m reviving my daily meditation practice, and I’m putting renewed energy into the Lovingkindness Meditation. That means that I’ll be focusing on the well-being of all of you as well as myself, and the request that I make is that you join me in that, especially in wishing yourself love, joy, peace and health. I also invite you to look at your own life and infuse it with even more heart and love energy. This is actually a selfish request, because when one of us does this, it benefits everyone, most often in ways of which we’re not aware. And when you enhance your life in this way, it benefits me as well as the rest of the world. I’m also determined, with Joan, to move my body more, to love it and care for it more, and to be grateful for it.

And I could use a hobby. Earlier in the year, I enrolled in a class where I made an ‘ukulele. That’s it in the picture, taken a 90-second walk from our apartment. (Yes, we really live in such a beautiful place. Amazing, huh?) I suppose it would be a good idea for me to learn how to play the damn thing, and it would be a good use of my time. I also started to learn ʻōlelo Hawaiʻi (the Hawaiian language), but that got interrupted as I studied Swedish for a few months in preparation for my trip to Sweden. I know a few words in Hawaiian, but now Iʻd really like to get at least semi-fluent. Itʻs a beautiful and very expressive language.

And the adventure continues. In two weeks, Joan and I board a ship in Honolulu for a 17-day cruise to French Polynesia, New Zealand and Australia, where we’ll visit friends in two different parts of the country. Holy crap! This was the kid with very little money who grew up dreaming the impossible…that one day he might actually travel overseas. Miracles are more than possible. They actually happen. And it is my dearest hope that your miracles materialize as well. Like a ripple on a pond’s surface I believe that one person’s miracle can somehow inspire the realization of others’ miracles as well.

Whoever you are, I wish you health, love, peace and joy in abundance.

I have a distribution list to notify folks when I publish a new post (which, I’m afraid, is rather infrequent). If you’re not already on the notification list, please just send an e-mail message to atpeacewithcancer@gmail.com with “Subscribe” in the subject line, and I’ll gladly put you on the list.

Mike

More Challenges, More Opportunities

All day I think about it, then at night I say it.
Where did I come from, and what am I supposed to be doing?

My soul is from elsewhere, Iʻm sure of that, and I intend to end up there.
The drunkenness began in some other tavern.
When I get back around to that place, Iʻll be completely sober.
Meanwhile, Iʻm like a bird from another continent, sitting in this aviary.
The day is coming when I fly off, but who is it now in my ear, who hears my voice?
Who says words with my mouth?
Who looks out with my eyes? What is the soul?
I cannot stop asking.
If I could taste one sip of an answer, I could break out of this prison for drunks.
I didnʻt come here of my own accord, and I canʻt leave that way.
Whoever brought me here will have to take me home.

Rumi, translated by Coleman Barks, in The Illustrated Rumi

25 July 2024

Itʻs been an interesting couple of weeks. I sit here now about to fly off to Finland and Sweden to connect with dear friends, having wondered earlier today if Iʻll have to cancel the trip. A week ago, Joan and I were working to recover from COVID infections, and my symptoms were an awful cough and an even more awful bout of severe nausea that put me in a hospital emergency room. We both tested negative on Sunday and Monday, but then this afternoon we came up positive again, which led me to come close to canceling my journey. A brief phone conversation with a physician assured me that, since I had no symptoms, I would be fine, and so would those around me. An emotional roller coaster.

My time in the emergency room was a test. It took a long time for the nurses and doctors there to bring the nausea under control. As I lay in physical agony, I found that I couldnʻt control my thoughts as well as I want to. I started to do what Iʻve sworn not to, asking what might lie ahead with the cancer experience. Will this be my future? Thank God I had enough sense to push back that fear for the most part, but it became clear that I yet have much work to do. I donʻt meditate enough. If anything, the experience made very clear, again, how fragile my life is, and how vital it is to cherish every second.

Regarding the cancer experience, I went in for a bone biopsy on Wednesday. I found out that to accomplish that, the clinician actually drills a tiny hole in the bone to get at the diseased tissue. OMG! I was told that Iʻd be awake but in a twilight state. The hell with that crap! I have no curiosity about the experience, and I have no desire to be aware of what theyʻre doing while theyʻre doing it…Iʻll take a play-by-play afterward. So I encouraged the nurse to be generous in administering whatever sedative they were using, then they could have their way with me. Apparently it worked because I slept through the entire procedure, waking up with a tiny pinhole above my ass and almost no soreness. Hooray for drugs! My doctor will send the sample out for genetic testing, hoping to find a vulnerability we can address. He’s scheduled a call to review the results while I’m in Finland. Hooray for the ease of worldwide communication!

I ask you all please to hold a vision for me of powerful and effective options so we can continue to control and manage this condition. I’d sure like to stick around for a lot longer and be fully functional as long as I AM around.

So that’s the news. I wanted to post because the realization of my fragility also enhances my awareness of how many people I love and how much I want them to know that I love them (you).

Whoever you are, I wish you health, love, peace and joy in abundance.

I have a distribution list to notify folks when I publish a new post (which, I’m afraid, is rather infrequent). If you’re not already on the notification list, please just send an e-mail message to atpeacewithcancer@gmail.com with “Subscribe” in the subject line, and I’ll gladly put you on the list.

Mike

The Adventure Continues

I’ve had experiences which I never would have had, for which I have to thank the cancer. Humility, coming to terms with my own mortality, knowledge of my inner strength, which continually surprises me, and more things about myself which I have discovered because I have had to stop in my tracks, reassess and proceed.
Freda Naylor

13 July 2024

Well, it’s back. My most recent PET scan indicated that the cancerous activity that was not apparent for the last two years has reappeared. I haven’t posted much lately because it didn’t seem there was much to say. Now, however, I guess there’s news.

For those of you who are interested in the details, the activity is nowhere near as extensive as it was two years ago…apparently just in the sternum, the pelvis and the lower back. My doctors all ask if I have pain. Yeah, of course I have pain…I’m 74 years old. But I have no idea if it has anything to do with the crud in my bones. At this point, I’m guessing no. An encouraging bit is that my oncologist says it’s developing very slowly, which gives us time to explore and implement options.

Options. Hmmm. I’m getting a biopsy in a couple weeks, after which they’ll do a genetic test to identify any new vulnerabilities, which might mean a totally new treatment regimen. If not that, there’s a slightly stronger hormonal medication to augment what I’ve been taking for the last two years. The therapy so far has been pretty effective in eliminating most body hair, rearranging or enhancing a few fat cells downward and (yay!) causing hair to regrow into my bald spot. Thankfully, no manboobs yet, but there’s always hope if I go to a stronger medication. And, oh yeah, the hot flashes. Ladies, I salute and admire you in solidarity. Considering all these possibilities, the last resort is another round of chemotherapy, which we’d all like to avoid. So yes, there are options, yet to be determined.

Some have asked how I’m feeling about this. Maybe there’s something wrong with me or I’m already brain dead, but my main reaction is “Well, ok… What now?” The fact is that I really don’t know how this will play out, and I’ve for years I’ve put a lot of energy into learning not to put a lot of energy into catastrophizing about things I can’t predict. Why build fantasies of horribleness in a state of ignorance? I don’t enjoy drama (any more, anyway), so it’s unlikely that I’ll create it around stuff I don’t know. Look, I’m gonna die at some point, from this or something else, and I just hope it’s not painful and troubling, but if it is, ok. I’ll do what I can to be comfortable and to live fully until I can’t. To be honest, my main concern is for those around me, especially my wife Joan. She’s strong and brilliant, and being the amazing person she is, she’s attracted a superlative support system. She’ll be fine, no matter what. But the fact is that if this gets really serious, having a husband whose body is going kerflop has to be a pain in the ass.

Beside the health situation, there IS some newsy info. In a few days, I’m heading to Puget Sound for a reunion with the folks with whom I served in Thailand in the Peace Corp 50 years ago. Kudos to the folks up there who have worked so hard to put this together. (Unfortunately, I’ve had to cancel this trip. Joan and I have both tested positive for COVID, and I’m spending time in bed coughing.)

Even more amazing is the fact that at the end of July I fly off to Finland to spend a couple weeks with my four AFS brothers and sisters and their spouses from when I was an exchange student as a junior in high school 57 years ago. THAT, to me, is miraculous. Matti, Pekka, Liisa and Eeva have already planned out my entire itinerary, and I’m really excited about seeing them after all these years. From Finland, I travel across to the far north of Sweden to attend the wedding of Karin Karlsson, a young woman I met (and adopted) as we walked on the Camino de Santiago 11 years ago. I flera månader har jag jobbat med att lära mig svenska, men ännu är mitt ordförråd hemskt. (For several months I’ve been working at learning Swedish, but my vocabulary is still terrible.)

And there’s more…Joan and I have booked a cruise from Honolulu to Australia in October to visit friends Down Under. I often say that I lead a magical life, and I do. The cancer is just another aspect of it.

I must say that in relation to the quote from Freda Naylor at the head of this post, this health situation has brought me to consider what more I can do with my life that is of service, that can make a difference, that can support people and the world. At this stage in my life, having finished a rewarding career that I know could impact people positively, I feel like I’m not doing enough. It seems that I live safely in my little bubble., but I want to do more. Unfortunately, my imagination fails me on this, and I must admit that I have always struggled with a strain of laziness. Enough said at this point…just a thought.

I’ll end the post by acknowledging again the skilled and compassionate medical team that continues to be an ongoing gift in my life. These are Kaiser physicians Dr Hoa Doang, Dr Tom O’Toole, Dr Levi Ledgerwood and Dr Natalie Nguyen, as well as my primary care physician, Dr Jerry Huang. It is astounding that I have had the good fortune to have had these folks continue to care for me.

Whoever you are, I wish you health, love, peace and joy in abundance.

I have a distribution list to notify folks when I publish a new post (which, I’m afraid, is rather infrequent). If you’re not already on the notification list, please just send an e-mail message to atpeacewithcancer@gmail.com with “Subscribe” in the subject line, and I’ll gladly put you on the list.

Mike

Impermanence…and an Apology

We are snowflakes, melting on the tongue of the universe.
John Mark Green

6 May 2024

Two days ago I attended a memorial service for Mike Moran, my dear, dear friend and brother. He was a remarkable individual who loved deeply and made a genuine impact on the world…he had touched the lives of thousands, including the several hundred souls who attended the memorial. More than anything, though, he was my friend. We were FM and FP to each other (F*ing Mick and F*ing Polack), and we had some of our best times when we reverted to our 14-year-old selves. And as I sit here struggling to find words to put in this post, I’ll just say that I miss my friend and am so grateful for his love.

Mike’s passing was no surprise. A shock, but not a surprise. His body had been shutting down for several years, and it became his prison. He was ready to be released, and the ending of this vital man’s frustration gives some comfort in my sadness to know that we’ll never be able to sit quietly together by a raging fire and watch the snow fall on the pines of northern Idaho. Enough said…I don’t feel I can competently add to the many words of loving praise that so many have shared. I can only say that I will always miss you, FM, and thank you, thank you, for being such an important part of my life.

Dear friend, whoever you may be, I ask your forgiveness for my laziness and selfishness. At the memorial, I saw many old friends and familiar faces, and one dear friend from long ago said “Mike, it’s so good to see you. I didn’t know if you were even still alive, though I kept checking your blog.” It’s been almost a year since my last post, and I’ve thought often of updating everyone on what’s happening, but I’ve been unmotivated to do so. In a way, introvert that I am, I guess I didn’t feel that folks would care that much. That’s an insult to the many, many people who have shown me so much love in my life. Please forgive me for that.

Before I continue, I’ll let you know that I’ve had at least two PET scans since my last post, and they’ve both come up clear in regard to any cancerous activity. At this point, indications are that I get to stick around for a while longer, despite the seemingly dire prognosis I had three years ago. So the good news healthwise is that there’s no news. I have another scan in July, and I expect it will have similar results. At least I hope so. If not, well, as my quote above states, I’m really just another snowflake on the tongue of the universe. We all gotta melt at some point, as my dear friend Mike recently illustrated with much grace.

There’s a lot of newsy stuff to share, but I don’t do Facebook and I’m not into posting pictures and stories every time I burp. For those who are interested (I can’t imagine why), Joan and I continue to spend more than half the year at our lovely condo in Hilo, Hawai’i, we play mah jong with friends twice a week there, I walk goats and service an emu’s enclosure every Wednesday, and while we’re in California, we spend time with friends and family. Speaking of friends, I’m off to Finland in August to visit with exchange-student brothers and sisters from 55 years ago, then to the wedding of a much beloved friend way up in Swedish Lappland. In October Joan and I board a ship in Honolulu for a cruise to Australia to visit friends there. Damn, we get to lead an amazing life. But enough of the newsy stuff.

And I want to say thank you again to all of you who saw me through the health challenge of a few years ago and who have continued to think kindly of me every now and then . I really do appreciate your love.

Whoever you are, I wish you health, love, peace and joy in abundance.

I have a distribution list to notify folks when I publish a new post (which, I’m afraid, is rather infrequent). If you’re not already on the notification list, please just send an e-mail message to atpeacewithcancer@gmail.com with “Subscribe” in the subject line, and I’ll gladly put you on the list.

Mike

Memories, Joys, Sorrows and Love

If the people we love are stolen from us, the way to have them live on is to never stop loving them.
James O’Barr

29 May 2023

Today is Memorial Day in the United States. For those of you who live in other places, it is a national holiday meant to honor military men and women who have died in service to the country. In many places, there are parades, politicians trying to sound noble, military bands, more politicians, and (mostly Christian) ministers intoning prayers. It is also seen to be the first day of the summer season, so many families head to the beach or to parks for outdoor picnics involving the mandatory searing of animal flesh.

Hawai’i (at least Hilo) does it differently. Yesterday we took part in a very moving event that is Hilo’s approach to Memorial Day, a Celebration of Life (link to online announcement) staged by a hospice organization in town. Of course there was a tribute to fallen service men and women, but the real focus was on remembering all our loved ones who have passed. For several weeks before the event, people were encouraged to purchase floating paper lanterns that they could decorate to honor their (our) loved ones who have left us.

As for the event, over 2000 people attended and, yes, there were politicians. There was, too, a small color guard that held flags as the crowd sang the US National Anthem as well as Hawai’i Pono’i, the Hawaiian National Anthem (please click the link…it’s a beautiful rendition). There were prayers too, but with a typically Hawaiian cultural twist, first in Japanese by a woman Buddhist minister, then in Hebrew by an awesome woman rabbi, then in English by a male (of course) Roman Catholic priest and finally in Hawaiian by a male chaplain from the hospice center. Those who knew it then sang the Doxology in Hawaiian (this link too takes you to a beautiful version)

Hundreds of lights of loving remembrance
Our light of loving remembrance (much credit to Joan for this)

To end the event, all of us who had prepared lanterns floated them out onto the bay. Even now, as I type this, there are tears in my eyes as I think of it all.

As on the mainland, the beaches here have been packed today, and the aroma of burning animal flesh floats out over the ocean. So yes, it’s the beginning of summer, but here in Hawai’i it’s also the start of the Bon Dance season. Bon Dance, or Obon, is a Japanese festival that honors the ancestors. (The link shows you a bit of what it looks like, kind of like a line dance in the round.) In Japan, Obon happens on August 15, but here in Hawai’i it lasts all summer. In Hilo, the first Bon Dance happens appropriately at the annual Celebration of Life then moves from one Japanese Buddhist temple to the next until August. A very cool way to honor your ancestors.

There’s been a long silence in this blog, mostly because my life has settled into a balanced normality. I am aware, of course, of the cancer diagnosis, but I’m still under treatment and the last two scans (October ’22 and April ’23) indicated that my body was apparently clear(!). But I was moved to write again to share with you this marvelous event and to remember and honor with you those who have left us.

One of the many gifts I’ve received through my cancer adventure has been a strong awareness both of life and of its ending. I think a lot about the fact of death, but not at all in a morbid or depressing way. I mentioned here a long time ago that I’ve done a good deal of reading–and watched many videos–about near death experiences (NDEs). I tend to be a skeptic in all things, and it takes a lot for me to sign up for any particular belief, especially if some religious teacher or text is telling me it’s THE TRUTH. Right. Run away quick. The most I’ll normally commit to is to accept a possibility. With that in mind, I’ve had years of contact with and study of many human traditions. I’ve listen with a hopefully open mind to countless stories of others’ life-changing experiences. And many times has my heart been touched deeply by music, by natural beauty and by my fellow creatures. So I’ve come to accept a strong possibility in regard to the nature of our existence as participants in this universe thing. The main problem is that language fails in describing this possibility, but I’ll make the attempt.

In the first place, these thoughts are by no means new…I’m plagiarizing shamelessly from folks a lot wiser than I. One observation that is almost universal among those who have experienced NDEs is that consciousness survives even after the body is clinically dead and inert, after there is absolutely no detectable brain activity. Another key perception is a feeling of intense and pervading love and safety. Some see lights and others don’t. Some meet deceased relatives and friends and others don’t. Some meet a divine figure such as Jesus or other such prophet, but most others don’t. Many speak of life reviews. The two main constants that impress me are the continuance of consciousness and the reality of love. It’s also significant to me that many folks speak of transcendence, a feeling of energy or consciousness (words fail) that weaves through and unites all of creation.

So I accept the strong possibility of such a reality. I accept the strong possibility that we are all linked within an infinite ocean of energy/consciousness/love/bliss. In fact, I accept the very strong possibility that we are all tied together in a universal web of ???. The whole concept of a personal God…an old guy sitting on a throne someplace…doesn’t work for me. All of our gods, I think, are just representations of different aspects of an ineffable reality, but they’re just symbols dumbed down enough so that we can start to understand what cannot be understood. We use those gods, like Jesus, Shiva, Pele, Ogun, Amaterasu, Osiris, Zeus, etc., to touch and be touched by a reality that lives within us but exists way, way beyond our limited experience of everyday reality.

At base, then, I’m a skeptical mystic. St Teresa of Ávila got it. So did the Buddha. So did Yogananda, and so do a few shamans who live on the periphery of traditional societies. I can’t say I’ve got it, but I sure accept the possibility. And I’m curious. What do you think? Feel free to e-mail me at atpeacewithcancer@gmail.com.

Whoever you are, I wish you health, love, peace and joy in abundance.

I have a distribution list to notify folks when I publish a new post (which, I’m afraid, is rather infrequent). If you’re not already on the notification list, please just send an e-mail message to atpeacewithcancer@gmail.com with “Subscribe” in the subject line, and I’ll gladly put you on the list.

Mike

Where I Live, There Are Rainbows

In life, you either choose to sing a rainbow, or you don’t. Keep singing.
Kathleen Long

16 April 2023

(I have a cancer update a little farther down if youʻd like to know my current situation…)

This past week Hilo hosted Hawaiʻi’s biggest party, The Merrie Monarch Festival. You might call it the Olympics of Hula. Thousands of people come from all over the islands, from the mainland and from across the Pacific to celebrate hula and to participate in competitions. The whole town fills up with hula presentations, arts/crafts fairs, cultural activities and a totally unique parade on the last day. It’s Hawaiʻi at its best. For years Joan and I longed to be here for it, and now weʻre experiencing it in person for the second year. Coming to Hawaiʻi as a visitor can be wonderful experience, but being here as a resident, as part of the community, and experiencing the culture and the Hawaiian language as simply a part of everyday life goes to a whole other level of wonder. And our dear friends Lottie Tone and Dan Riordan have been here to share it with us, which makes the experience even more special.

Hula, incidentally, is not really what you might think if youʻve seen it as part of a lūʻau show at a resort here or if youʻve seen snippets of it in tourist promos. More than just a dance form, it incorporates story-telling and pride in Hawaiian language, culture and history. In fact, itʻs a profound way of life thatʻs deeply rooted in the culture of these islands.

Forgive me if Iʻm being obnoxious in pushing this at you, but if you have any interest in seeing what real hula looks like, here are some YouTube links to past Merrie Monarch performances. There are two basic styles of hula: hula kahiko (traditional hula) and hula ʻauana (modern hula):
Hula Kahiko Wahine (Womenʻs Traditional Hula)
Hula ʻAuana Wahine (Womenʻs Modern Hula)
Hula Kahiko Kāne (Menʻs Traditional Hula)
Hula ʻAuana Kāne (Menʻs Modern Hula)

The other day, we watched a hula presentation by a hālau hula kūpuna (hula group of elders) that performed a hula and sang a mele (song) called Hawaiian Lullaby that Iʻd never heard before, and the opening verse is the origin of this blogʻs title. The song touched me deeply because it brought home how incredibly grateful I am to be living in this wonderful place. You can hear the song, see the words and see its hula if you click here.

If I have any regrets at all in life, itʻs perhaps that Iʻve come to Hawaiʻi so late in life, which means I didnʻt join a hula hālau when I was much younger and had the energy to make it a part of my life.

That leads me to the cancer update. Several weeks ago, I had another PET scan, and the situation remains unchanged: no detectable evidence of cancerous activity in my body. The word “miracle” has come up a number of times, including from one of my (amazing, wonderful) doctors. I realize it might still come back, but for now, Iʻm living my miraculous life. So how did this happen? For one, an outstanding medical team and effective hormone therapy. Perhaps the healing effects of living on a magical island for much of the time. Maybe my approach to the cancer has helped as well. Iʻve never “fought” it: I simply gave it permission to be there as long as it did no further harm. Maybe because I wasnʻt fighting it, it just got bored and left. And certainly the ongoing mental, spiritual, emotional and energetic support that all of you have given me has had a huge effect. Thank you!!! Mahalo!!! Tak!!! Kiitos!!! ขอบคุฌครับ!!! ¡¡¡Gracias!!! Merci!!! I feel like my family and friends have helped give me my life, and I thank you many times over for your love. And the journey is far from over, so I hope we will continue sharing that love and support.

That brings me back to the idea of rainbows. (The image is of a double rainbow over Waiānuenue…Rainbow Falls…in Hilo.) Yes, there are rainbows where I live now, and colorful flowers throughout the year, and birdsong. But there have always been rainbows in my life, no matter where I’ve lived. I was not, however, always willing to see them. This cancer experience has taught me to find my rainbows, no matter whatʻs happening. Iʻve said before that the cancer has been a gift. I could, if I wanted, focus on the fact that my face doesnʻt work right, that I look kinda funny now, that I have perpetually low energy, that I get hot flashes, that I have to make regular trips to medical facilities, that (after my heart attack) I have to watch carefully what I eat, that Iʻm not sure I have the stamina to join a hula hālau for elders, that the hormone therapy has destroyed my libido. But how absurd to focus on all that when Iʻm alive! And that I have an amazing marriage and family, and friends whom I love deeply, and….so much more.

Yes, rainbows are something we can see physically sometime, but those are only reminders of the fact that rainbows live primarily in our hearts, and we can choose to recognize them at any moment. So, my dear friends, with all the love youʻve shown me as I move through this journey, I will return your love by challenging you to find your rainbows. Iʻve known deep depression, and if youʻre there, you have all my compassion. But, believe me, there are rainbows in your life if you put out the effort to recognize them. You may need some help to do it, as I did at some points in my life, but please believe your rainbows are there. And if you DO see your rainbows, I celebrate the joy of color and possibility with you.

Whoever you are, I wish you health, love, peace and joy in abundance.

I have a distribution list to notify folks when I publish a new post (which, I’m afraid, is rather infrequent). If you’re not already on the notification list, please just send an e-mail message to atpeacewithcancer@gmail.com with “Subscribe” in the subject line, and I’ll gladly put you on the list.

Mike

Moods Come, Moods Go

I believe in angels.
ABBA

7 March 2023

This post might be a bit different from the others I’ve published. I’m at a low point. But before launching into my whine, I’ll provide a little background.

Cane at Kaloko-Honokōhau National Historic Park, soon to fly home to Arkansas.

Yesterday I dropped off my godson Cane West (a delightful human being) at Kona Airport (a bit under two hours away, on the other side of the island) after having spent a magical day with him exploring wonderful places, the culmination of an experience-full week-long visit. As I drove home across the island, listening to my mellow Hawaiian tunes, I came to a place where I could see the lights of Hilo below and ahead of me, and I was seized with an intense feeling of gratitude and joy. This as the ABBA song “I Have a Dream” filled the car, performed by the Mākaha Sons, a gifted and soulful Hawaiian group. (Yes…please click the link.)

Then there’s today. Many of you know that in the past I had developed impressive mastery of the art of depression. I was able to remain gloriously depressed for long, long periods. Of course it took much energy and time to develop such a high level of skill, but I was dedicated to the task, and I got REALLY good at it. But then a few years ago, I decided that it just took too much energy and it also took a toll on those around me, so, with the help of my family and friends and a couple of very skilled professionals, I gave it up. It was hard, given how much I enjoyed being depressed, but it turned out to be a good decision. (If I’m hitting a chord with you, if you’re in a similar place, please give it some thought and get help. It CAN get better.)

Depression is a little different in Hawai’i.

You know, though, old habits developed with so much dedication are difficult to abandon entirely. So a lot is happening by the end of this month. Another PET scan to see what’s happening with the cancer. Who knows. Heart condition. Who knows: I could go any minute. Possibly dicey tax situation. At this point, who knows…gotta see our tax gal. And up to now I haven’t paid much for all the treatment I’ve gotten, but I just got a rather large bill from Kaiser for stuff that was free before. I’m working with them on it, but who knows. That’s the point. Who knows. Uncertainty. In my past messages to you all, I’ve been perhaps a bit arrogant about affirming that I don’t worry about outcomes that I can’t reliably predict. Why waste energy on disempowering stories? In fact, I’m not obsessing about imagined realities of horribleness. I know better than to actually believe them. BUT I know they’re possible, and that’s enough to trigger some old shit. And, truth be told, I’m pretty worn out after a week of purely enjoyable touring with Cane. We love sharing our home here with visitors, AND it takes energy, so the resistance is down.

Sunrise in Keaukaha, our neighborhood

So what to do? Oh, for heavens sake. This mood will pass. They always do. I felt so happy yesterday. I feel like crap today. Nothing is permanent. Actually, it’s a little amusing to watch the moods come and the moods go. They’re not me: they’re just stuff that I experience. And if I didn’t experience all that, I’d either be dead or stuck on mood-altering drugs designed to keep me from harming myself and others. And, wow, I have so much compassion for people who must use emotion-deadening drugs to help them cope with a serious psychological condition. So much compassion…I wish them peace.

That brings me back to my opening quote. Do I believe in angels as celestial beings? Probably not, but I do believe in the power that they symbolize. I believe in the possibility of something deep and beautiful that infuses us and the universe around us. It’s what brings me to tears when I witness kindness and strength. Angels at work. So, Mike, go ahead. Stay depressed for a while. It’s OK and it’s normal. You’ll get over it. The angels got your back.

How come the “normal” angels are almost always female and the male angels either look like badass warriors or gay porn stars?

So how about you? Do you believe in angels?

One other thing: I’d so appreciate it if you would remind the angels that we’re paying attention. I invite you again to practice the Lovingkindness Meditation, first for yourself then for others (including me as well, if you would). I promise I’m doing the same for both you and me.

Whoever you are, I wish you health, love, peace and joy in abundance.

I have a distribution list to notify folks when I publish a new post (which, I’m afraid, is rather infrequent). If you’re not already on the notification list, please just send an e-mail message to atpeacewithcancer@gmail.com with “Subscribe” in the subject line, and I’ll gladly put you on the list.

Mike

Viriditas

“O most honored Greening Force,
You who roots in the Sun;
You who lights up, in shining serenity, within a wheel
that earthly excellence fails to comprehend.
You are enfolded in the weaving of divine mysteries.
You redden like the dawn
and you burn: flame of the Sun.

Hildegard of Bingen, 12th Century German mystic

16 February 2023

It’s been over a month, so I suppose it’s time for another post. Joan and I have been at our home in Hilo, Hawai’i since mid January, and before I go on, I’ll say that it’s been raining. I mean RAINING. That’s not unusual for Hilo, which gets an average of 127 inches (322 cm) of rain a year. That’s more than ten feet (3 meters). But we don’t normally have day after day of the stuff. We’re supposed to get about 20 inches (50 cm) during the next 3 days. In fact, I’m certain that this morning I saw a guy in a long robe shooing a pair of nēnē up a ramp onto a huge boat. (Nēnē are Hawaiian geese, the state bird and an endangered species.) But Joan just says I was seeing things and should cut way back on the cannabis Iʻm using to help me sleep.

20 February 2023

Rainbow Falls, a major Hilo tourist site. On the left, as it normally appears. On the right, what it looked like this morning.

The rains continue. This morning I even noticed a spot of green moss in a location on my body that I choose not to identify. We DO have breaks occasionally, when it stops raining for a while. In fact, Joan and I helped out at the Pana’ewa Rodeo yesterday, and it deluged in the morning. But by noon, when the events began, the rain had stopped and the roping, riding and mugging (roping steers and tying their legs to incapacitate them) went on with no problem. Yes. Rodeo in Hawai’i. There’s a huge paniolo (Hawaiian cowboy) tradition here, especially on the Big Island, with a fascinating history and unique customs in unique conditions.

I suppose we could complain about the rain, and sometimes we do briefly, but the fact is that rain is a major reason why these islands are so inconceivably beautiful. Whenever we’re away on the mainland, we long for the utter greenness of our home here. Although our complex is a 90-second walk to the ocean, we lack the ocean view that most of our neighbors have: we look out from our living room at a wall of green jungle. There’s a delightful Hawaiian word, uluwehiwehi (oo-loo-vay-hee-vay-hee), that means lush greenness, verdancy, fecundity, and (by extension) vibrant aliveness. One hears the word often in Hawaiian songs. Traditional Hawaiian chants and songs, incidentally, are generally not about unrequited love, as in country music (my dog died, my wife left me, my truck broke down and my kid’s in prison). Hawaiian music tends to praise the beauty of nature and to recount the exploits of gods and heroes, both male and female.

The view from our lanai (balcony) on a chilly (66˚F/19˚C) midwinter day
The Green Man, an ancient and powerful symbol of nature’s (and our) abundance

All of that leads me back to St Hildegard of Bingen (CE 1098-1179), who is quoted at the head of this post. She was a badass German writer, composer, philosopher, mystic, visionary, and medical practitioner who was highly honored at a time when the possession of the “wrong” set of genitalia was a severe social disadvantage. Prominent in Hildegard’s writings is the Latin term viriditas, which to my mind is uluwehiwehi transported to a colder clime. To Hildegard, it means many things. Of course it expresses the sheer joy and exuberance of nature as it throws forth new growth in the spring and provides an abundance of fruit and other useful stuff for our benefit and for that of our fellow creatures. Viriditas also means the inherent ability (drive?) of human beings to grow and heal.

I don’t mean this to be an intellectual treatise, but I wanted to offer some background to what I’ve been thinking. The course of this cancer thing (and now a coronary condition) is a mystery. It might re-emerge or might not. In any event, the clock is ticking for all of us, and mortality is a reality (sorry, cheap poetism…and yes, that really is a word). So how do I express-enhance-strengthen-enliven viriditas/uluwehiwehi in this gift of a life that I’ve been given? Sometimes it’s hard for me to remember the joy. I often don’t sleep well. My tastebuds are screwed up from the cancer treatment. I’ve lost my ability to really smile because half my face doesn’t work. I have toe fungus.

(Oh get over yourself, whiney baby!)

Then I remember that I have an amazing loving family and spectacular friendships. I live in f-ing Hawai’i, with another lovely home in California. I’ve traveled all over the world and have had enviable experiences. Many years ago, I gained two degrees from Harvard University, virtually free of charge. The jams and marmalades I make are really, really good, as is most of my cooking. And on, and on, and on. I say all this not to impress anyone, but to remind myself of my many, many blessings. As I think about it, the key to joy, to feeling and expressing viriditas is gratitude. Gratitude can erase anger and envy. Perhaps it can’t eliminate sadness, but it can temper it. And it can amplify love and joy. At least that’s what I think. Would it be presumptuous of me to invite you, my friend, to grow the viriditas/uluwehiwehi in your life? The only reason I’d do it is to encourage you to be fully happy with a life that you recognize as rich and rewarding.

One more thing…many of you know that I volunteer every week at the Pana’ewa Rainforest Zoo here in Hilo. Little by little, I’m getting acquainted with my fellow creatures that I serve there. This process has continued to teach me the importance of patience and respect. Unlike some humans, animals know intuitively if you don’t respect them, and they will therefore refuse to interact. And if you’ve ever worked with non-humans, you know that they have a wide range of personalities. One day a week or two ago, one of the other volunteers was giving Rowdy, a blue macaw, a little outing. She set him on the gate in the area where we were working, which gave me an opportunity to dance with him. This is the kind of simple thing that can generate gratitude for me.

May simple things generate gratitude for you.

Whoever you are, I wish you health, love, peace and joy in abundance.

I have a distribution list to notify folks when I publish a new post (which, I’m afraid, is rather infrequent). If you’re not already on the notification list, please just send an e-mail message to atpeacewithcancer@gmail.com with “Subscribe” in the subject line, and I’ll gladly put you on the list.

Mike

Being At Peace With Not Being At Peace

Let go of certainty. The opposite isn’t uncertainty. It’s openness, curiosity and a willingness to embrace paradox, rather than choose up sides. The ultimate challenge is to accept ourselves exactly as we are, but never stop trying to learn and grow.
Tony Schwartz

12 January 2023

I havenʻt posted in quite a while. To be honest, I havenʻt known what to say, but a couple of dear friends have guilted me into inflicting more stuff on the folks who are kind enough to tune into this site. This blog is named At Peace with Cancer, but since my last PET scan, Iʻm not sure how much cancer there is here to be at peace with. The question is, will it come back? Given how these things work, Iʻm told thatʻs likely. So am I at peace with not knowing? Itʻs interesting that accepting stuff you know is a lot easier than being at peace with stuff that you donʻt know. Wait! When I got the diagnosis, I had no idea how it would progress, and I found a way to be at peace with it. How is this different from having the cancer disappear without my knowing if/when it will reappear? Are there different levels of unknowing? Is it easier to accept and work with a situation for which I have some knowledge? “Oops. Got cancer. Could turn out lots of ways, but I donʻt know how itʻll work out. Not gonna make up stories and worry about it.” Thatʻs different from “Oops. Got life. Could turn out LOTS and LOTS of ways, but I donʻt know how itʻll work out. So many possibilities. I think Iʻll make up some stories and worry.” Iʻm not sure Iʻm making sense here, but youʻre smart people so I hope you get it. For me, less knowledge = more uncertainty = more opportunity to catastrophize. But, at base, itʻs still the same. I donʻt know, so making up stories of horribleness makes no sense, no matter how much information I have or donʻt have. So I guess I end up being at peace with not being at peace, which reminds me of a very funny scene from an old British comedy series, The Vicar of Dibley. Here’s a link: I Can’t Believe I Can’t Believe It’s Not Butter Isn’t Butter.

Moving along then, rather than sink into energy-sucking unproductive negative fantasies, my choice is to remind myself again that I donʻt know what will happen and to enjoy the present moment as much as possible. Itʻs usually wise to move my attention away from story-making and replace the stories with curiosity. In that vein, I wonder how much of this mind-diddling has to do with weather and location. Iʻve been in Northern California since the end of October, and itʻs been mostly cold and gray, with major storms in the last week or so. Some of you would say that 45 to 55 degrees Fahrenheit (7-13º C) isn’t really cold, but, you know, it’s all relative. The fact is that, if I’m not having a hot flash (thank you, life-giving hormone therapy), I’ve been cold since I arrived from Hawai’i. We’re returning to Hilo in just a few days, and I’m curious to see if the change in location changes my attitude. Of course, ultimately, I get to decide. It’s bad policy to allow one’s physical situation to control one’s moods…giving away that power strikes me as a form of victimhood. The fact is, however, that I just like to whine when I’m away from my home in Hawaiʻi.

A thought-provoking situation…after the clear PET scan and perhaps as a result of feeling burdened by responsibilities in California, my meditation practice has been sporadic. But I restarted on a regular schedule a few days ago, and it DOES make a difference. The funny thing about meditation for me is that nothing happens. I just sit there, do the Lovingkindness Meditation or just watch the breath and I get…nothing. This goes along with a wonderful 6-minute video by the Zen monk Shohaku Okumura entitled Zazen is Good for Nothing. The message is basically “just shut up and sit.” Good advice. As I watch the video, I realize that this idea ties in perfectly with being at peace with not being at peace. In the end, though, somehow, meditation does make a difference. Don’t ask me how; it’s just different. In an agreeable way. It’s especially nice to get back to doing the Lovingkindness thing…I have a whole list of folks I focus on.

Before I close, I want to put some things in perspective. So this prosperous, privileged old man wrestles with questions like “Am I at peace?” and “Gee, how long before I get back to my beautiful home in Hawaiʻi?” In the meantime, hundreds of people are living in tents and less on the streets of Sacramento and other places, pummeled by cold wind and rain. Innocents are being killed senselessly in Ukraine and other places in the world. And I adjust my thermostat to 70ºF (21ºC) and sit here waxing philosophic about uncertainty. I am ashamed to say that I really don’t know what to do that would make a difference. So I do my best to be kind in my tiny little world.

Whoever you are, I wish you health, love, peace and joy in abundance.

I have a distribution list to notify folks when I publish a new post (which, I’m afraid, is rather infrequent). If you’re not already on the notification list, please just send an e-mail message to atpeacewithcancer@gmail.com with “Subscribe” in the subject line, and I’ll gladly put you on the list.

Mike

Thanksgiving, Orgies and Miracles

Miracles are like pimples, because once you start looking for them you find more than you ever dreamed you’d see.
Lemony Snicket, The Lump of Coal 

25 November 2022

Yesterday was Thanksgiving Day in the United States, a peculiar American holiday that starts what we call the “Holiday Season.” It’s based on a cozy myth of European invaders engaging in a lovefest with a band of Native Americans in what is now Massachusetts. Well, sort of. The Wampanoag were pretty kind and generous to the newcomers at first, but within a generation, about 90% of them had died from diseases the Pilgrims had gifted to them, which, I assume, the Wampanoag found rather alarming. In addition, more and more Europeans kept showing up and eventually started using the Wampanoag and other natives for target practice, which definitely soured the atmosphere. But please forgive my historical digression…

Other peoples see us Americans as being prone to excess, and our Holiday Season often goes beyond excessive to true orgy upon orgy (orgy in the sense of excessive indulgence, not necessarily sexual). It begins with families sitting down to watch the Macy’s Thanksgiving Day Parade, with enormous (up to 31 m/102 ft tall or 54 m/178 ft long) blowup cartoon characters floating down Broadway in New York while TV “personalities” provide effusive commentary. Then the food. Many families gather to pretend they like each other so as to gorge on platefuls of roast turkey, mashed potatoes, green bean casserole, pumpkin pies and a long list of other coronarily destructive foods. Then the football. Some families retire after the meal to burp and belch at their 90-inch (2.3 m) television screens as they scream through the ether at American football players whose goal is to maim players on the opposing team while doggedly working to bash their own heads with enough force to inflict permanent neurological damage that will turn them to vegetables by the age of 70.

That, of course is only the beginning. We’re talking Holiday Season. Black Friday, the day after Thanksgiving, used to be the start of the Christmas shopping season (although now, I think, it starts sometime in August). It’s called Black Friday because it’s the day on which merchants traditionally move to profitability after having spent most of the year “in the red.” So stores compete with one another to offer the best deals on EVERYTHING, advertising shamelessly and leaving their doors open for 24 hours. But now, since so much of the world makes purchases online, who cares if the doors are open 24 hours a day? We’re not going to the mall anyway. Enter Cyber Monday, when the electronics that weren’t sold out on Friday are offered for even more obscene prices. (Are you understanding the orgy reference?)

Following Black Friday and Cyber Monday, we have nearly a month of sales, sales, sales, discounts, discounts, discounts, discounts. For those of us old people who actually go to stores, we’re inundated with often insipid politically correct “holiday songs” that have been purged of any discernible reference to the religious holiday in which the season has its roots, although I do like the idea of not assuming we’re all Christian (which I am not, although I have respect for many of Christianity’s peace-based, non-exclusionary beliefs). But wouldn’t it be cool to hear a Hanukkah song or a Diwali chant occasionally?

Christmas decorations. Now I’ve been to France, Spain and the Netherlands during the Christmas season. Paris has lovely, sedate, rather sophisticated holiday decorations, and the Dutch do it up with characteristic humor for Sinterklaasdag in early December. The Spaniards, I think, are too busy partying to bother much with decorations. In the US, OMG! Not everyone pulls out the stops, but some folks spend months setting up their winter wonderlands, and I’m certain that lights in their half of the city dim momentarily when they flip the switch.

Christmas is yet another occasion when many families come together to share the joy of the holiday spirit while they work so hard to pretend they like each other. Until Uncle Joe has had too much to drink and all hell breaks loose. (OK, not ALL families are like this. In fact, mine isn’t at all, but, sadly, many families do go through this annual drama, and I send them my healing thoughts.)

It’s finally near the end of the season, and we arrive at New Year’s Eve. I remember one year spending the holiday with Joan at a nice hotel on the California Coast where they offered a pricey sort of OK dinner and a New Year Extravaganza where we were expected to dance rhapsodically and celebrate with great gusto in the company of total strangers, bubbling over our two allotted glasses of California sparkling wine (they couldn’t call it champagne because it wasn’t from France). It was weird. We left early.

New Year’s morning and the obligatory Rose Parade. This is truly an orgy of horticultural excess. At least 75,000 roses. And that’s just roses. Millions of carnations, orchids, chrysanthemums, anthuriums, peonies, Venus flytraps (crap, I can’t even think of any more flowers to name). And those who live in Southern California (I used to live in San Diego.) revel in the opportunity to call relatives in places like Buffalo and Minneapolis to tell them that they really miss them and that, by the way, it’s about 70˚F (21˚C) outside. To finish the season, it’s more American football. This time, it’s university students attempting to maim each other and to get a head start on causing themselves serious brain damage.

There’s one more holiday that I haven’t yet mentioned…Kwanzaa (December 26-January 1). And frankly, unlike the rest of this diatribe, I haven’t anything snarky to say about it, because I think it’s a pretty cool holiday. Invented in 1966 after the Watts riots in Los Angeles, it celebrates the African American experience and potential. It’s based on seven principles: Unity, Self-determination, Collective work and responsibility, Cooperative economics, Purpose, Creativity and Faith. I really like the idea, and I hope that it becomes more widely known and celebrated.

With that last bit, I’ve intentionally shifted from snark to respect…I was just having fun being a smartass. I have to say that not everyone has the means to engage in this annual excess, although most try their best. And, truth be told, it’s fun to look at the decorations, while I’ve brought some GREAT stuff cheap on Black Friday. And it’s also true that many folks’ hearts are softened during this season. But, damn, it sure provides a lot of material for a few laughs.

For me, in fact, I really got into Thanksgiving this year, feeling grateful to tears for all the blessings I have in my life. I did my Lovingkindness Meditation in the morning, focusing on many of my friends and family, and it moved me deeply to establish that connection with many of you. We had the family over for dinner and we really enjoyed each other’s company, indigestion notwithstanding. Yesterday again, I became aware of the many miracles in my life.

I met with one of my doctors the other day. I love this guy. We joke around together and he also pulls no punches in regard to my situation. He said that my response to the cancer treatment has been remarkable, even miraculous. And he also said that what normally happens is that eventually the cancer re-emerges, which doesn’t surprise me. But, skeptic that I am, I’ve been wondering how much of this miracle can be attributed to the shots and pills I’m getting and how much is tied to the healing energy many of you have sent me. So I’m asking you please to continue with the healing thoughts, as I will continue to focus my love and healing energy on many of you. In regard to the cancer, I’m not sure I’m out of the woods…I may just be passing through a clearing, with yet more woods up ahead. In any event, I hope I have the wisdom to take whatever comes with grace and love.

And please don’t ever forget to include yourself in your thoughts and prayers of health and joy:
May your body and spirit be filled with health, love, peace and joy. And may you be an open channel of love, peace, joy and kindness.

There is one more miracle I’d like to mention. A little under two weeks ago, Knight Smart passed away. He was the husband of my niece Jean. He’d gone through a long process with throat cancer which required the removal of his larynx and led to a long and very difficult time, the details of which are unnecessary to share. I say this was miraculous because throughout this process, he remained cheerful and strong for his family. As Lisa, Jean’s sister and my other niece said as we all sat together after his passing, “He was always so goddamned happy.” Knight was a good man. A very good man. Each of us faces the end of our life, and Knight offered an example of how to do this with much grace and love. Godspeed, dear man.

Whoever you are, I wish you health, love, peace and joy in abundance.

I have a distribution list to notify folks when I publish a new post (which, I’m afraid, is rather infrequent). If you’re not already on the notification list, please just send an e-mail message to atpeacewithcancer@gmail.com with “Subscribe” in the subject line, and I’ll gladly put you on the list.