Freedom and happiness are found in the flexibility and ease with which we move through change.
Gautama Buddha
18 January 2025
So here I am again, surprised by the frequency with which I’m publishing these posts. The fact is that stuff is happening, and people have asked me to share it. I’m back in Sacramento from my healing trip to Hawai’i, with attitude readjusted.
A lot of changes have taken place in the five years since this cancer adventure began. Retirement. The emergence of a loving community in Hawai’i in addition to our community on the mainland. Crepey, wrinkled skin and age spots. White hair (but more of it, thanks to hormone treatments). A contact list full of phone numbers for at least half of Kaiser Medical Foundation’s departments. The opportunity to work with some very fine medical personnel. Crud spreading gleefully through my bones. The ability to speak authoritatively about the many joys of radiation and chemotherapy. The unwavering and loving support of my wife, my friends and my family. (I guess that’s not a change, but it’s important to mention it.) Gratitude for the fact that at least half of my face still works (better than having the whole thing go numb). Having a lot less energy after having been a guy who used to have lots. And now, unlike previous times, when I bend down to tie my shoes, I think about what else I can accomplish while I’m down there.
And more changes are soon to come. On 28 January, I begin a new chemotherapy regimen. My last PET scan showed that the medication I’d been taking was ineffective, so my oncologist has identified yet another possibility. It involves an infusion every three weeks, and if it works, it will be, as the doctor says, “ongoing.” Oh goody. I get to spin the chemo roulette wheel to see what the side effects will be. Fun stuff like nausea, vomiting, muscle pain, hair loss, constipation and diarrhea. (It’ll definitely be interesting to see if those last two can happen simultaneously.) I’ve been given a pile of anti-nausea tablets, which I regard as somewhat unpromising. AT LEAST man-boobs are not on the list of possible side effects, something I gratefully avoided the last time around.
It turns out that it will be possible to receive the treatment at the Kaiser clinic in Hilo, for the time when I’m able to travel back there. But right now, the doctor wants me to stay in Sacramento for a while so he can monitor my response to the treatment, probably at least into April. So the date of my return to Hawai’i is totally uncertain at present, and you know how much I love being there. But I’ve pretty much come to terms with that reality, and I’m getting to be at peace with it.
The elixir of life that is soon to be dripped into my veins is called Enhertu. (Who in the world comes up with these names?) When I first saw the name. I couldn’t help but think of the character Enkidu in the Epic of Gilgamesh, which goes back to about 2100 BCE in ancient Sumeria. (Yes, your blog author is a certifiable nerd.) Imagine: they were doing nausea-inducing chemotherapy 4000 years ago at the Kaiser clinic in the city of Ur. At any rate, for those of you who haven’t read the original in Akkadian cuneiform, Enkidu was a wild man who was defeated in combat by Gilgamesh, the king of Uruk, but he ended up being the king’s closest friend and protector. So I’d like to think of Enhertu as Enkidu’s somewhat more civilized brother, just as strong but also gifted with diplomatic talents that will help him convince the crud in my bones to back off and find a less harmful place outside of me to hang out.
So yes. More changes coming. Physical stuff to adapt to, maybe a different relationship with my beloved home in Hawai’i, readapting to spending more time on the mainland. Or maybe not. That’s the thing: I don’t really know. In regard to change, the theme of this post, and how any of us respond to it, it seems to me that there are two possible paths to follow. The first is to whine, moan and resist. The second is to accept changes over which we have no control, to adapt, maybe to embrace, and certainly to look for opportunities in the change. For me, the first path leads to unhappiness. The second path leads to peace. This brings to mind the very well known Serenity Prayer first composed by the theologian Reinhold Niebuhr:
“God, grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference.”
Changes coming. I’d be lying if I didn’t admit that I’m a bit apprehensive. But I also know that I don’t know. Some folks get very uncomfortable about not knowing what’s coming and about their inability to control. For me, I find not knowing a comfort, because it keeps my from constructing scenarios of horribleness. Yeah, it might be awful, but then it might not be. I prefer to remind myself of the possibility of might-not-be. I’d rather be happy.
One other thing…it’s been a long time since I’ve built a request around the Lovingkindness Meditation. When I first introduced it and people told me that they were practicing it on my behalf (and on their own behalf), the first medication made the cancer disappear for two years, and perhaps all that focused Lovingkindness consciousness had a helpful impact. So now I’m asking a favor of you again, that you include the meditation in a daily practice, first, very importantly, to see yourself in health, love, peace and joy, then extending that energy to others, including (I hope) me. Thank you!
Here’s a link to a description of the practice.
Whoever you are, I wish you health, love, peace and joy in abundance.
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